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The endodontist had to cut through the ulcerations to drain the abscess. It was a very bad week and I lost 4 pounds. I am scheduled in one week with an Oral Pathologist. My symptoms have been waxing and waning every 3 to 4 weeks, just as the literature says it will. It was very bad yesterday, with erythema redness and swelling and ulcers at the gum lines. I took photos of it to take with me next week. Of course, with my luck, the symptoms will be better and they won't be able to do a biopsy unless there is a flare.

These pathologists only work 2 half days per month, so catching them at a time of the worse flare will probably never work out. I also have some vaginal symptoms at times and think I may have it there as well. I do not have any skin lesions otherwise - at least not yet! I hope I never do! I have not been particularly stressed since having the outbreaks, so do not believe it is that. I do have Type 2 Diabetes and allergies.

I developed asthma several years ago, at the age of Now, at 54, I have this. From what I have read, it lasts for about 20 years or so. I need to follow some of the suggestions I have seen regarding diet. I know that some foods many aggrevate it, so following a more bland diet and freeing myself of sugar may prove helpful. Also, I have not been given any prescription medications for it, other than Chlorhexadine mouthwash.

It does help me keep my teeth clean without having to scrub much. I have used Protopic tacrolimus for my Eczema in the past, which was somewhat helpful. Perhaps it will help this, if they choose to use it. Best of luck to everyone here with this problem.

Sheryl 27 June 12 Dear GALB, My two year son is suffering from a mouth desease which i cant realy figure out whether it is mouth alcers or mouth thrush, what is the remedy?

I did find it difficult to cope at that time so here I am still at this moment in time still dealing with the stress of bereavement after all these years in the form of mouth ulcers which come and go and made worse by certain food. I used to watch what I ate ie citrus,crisps, sweets etc but really I think it is just now an immune disorder which needs to be contolled by diet, trying to be healthier as I cannot find any solution whatsoever other than I do find toothpste without SLR does cut down the soreness, when you look at this site it seems a lot of sufferers are similar with stress being a big factor, I am sure some folk on the site have different health issues which contribute to mouth ulcers or OLP but I honestly think after all these years when stress is the first factor it is just a matter of keeping it under control to lead a normal as possible way of life.

You are not alone, wish someone would help with all the latest technology re health hopefully in time it will come. I think this is about the best one I have found for relief. Hope this info helps you I also take a vitamin B supplement and a one per day iron tablet which makes me have a bit more energy. Take care of your health is about all you can do at this moment Angela. Four years ago I had great trauma in my life and the OLP kicked in big time. Like many sufferers I have tried,and still try,all kinds of things to fight it.

My big problem is that I am a vegetarian and a lot of my staple foods, like tomatoes and onions, have become my worst enemies. I am using Difflam spray to help the latest bout of ulcers etc. I have changed amalgam fillings to white ones.

Stress is prevalent in my life and in my personality, it has brought on tinnitus too. Does anyone else have these too things going on intheir lives?? Angela 19 May 12 hi, i have had OLP for16 yrs and has been much improved over the last 4 yrs.

As many others had the biopsy and under the care of dental hospital for many yrs. Predisanol mouth wash helped plus Green peoples toothpaste via webpage helped. Still have low immune system but learned to live with it. I am sure we all feel your pain. I get great relief from Betnesol steroid tablets not for swallowing, only for diluting, swishing around the mouth and spitting out but they really work for me and others on the site reading other folks input.

Please also try the toothpaste Squiggle or others without Sodium Laurl Sulphate. I take the vitamin B complex and a 'one per day' iron tablet which has really helped my general health. Watch the citrus fruits and sweet stuff also; try other folks remedies and advice they offer. We are all trying to find some cure by trial and error. Hope you feel better soon. Liz 11 April 12 I have read some of the stories and I can feel your pain.

I'm going on 6 years with this horrible thing living in my mouth. He gave me a script for some drug I don't recall as that was about 6 years ago. No real help lips cracked and would bleed and at times my mouth broke out and I would suffer, as you people would know.

As far as stress goes it was a very possible cause. So we decide to stay here, sell the house in Whithorse, this we do. This has not helped with the mouth problem.

So now I am off compo they cut you off at age But now I am looking into Vitamin B plus Clobetasol cream 0. The cream seems to be helping quite a bit. So I Hope that the combo of the drug and B will work. I will post updates as they occur.

Thanks for being their for me. It started as only occasional pain but the more stress I came under the more the pain worsened. I was diagnosed with about every condition there is and finally with the biopsy which was extremely painful I got the right diagnosis.

I have been put on Plaquenil with has helped somewhat but it seems like everything I eat sets it off again. I am pretty well living on oatmeal and macaroni and cheese. The only thing I can drink is milk or water. I am diabetic and I can't eat real sugar so I have been using equal for years. Maybe that's one of my problems. I have to use a CPAP machine and the air from that agrivates it too.

I am at my wits end. I just ordered Squiggle and I sure hope that helps. The doctor is going to put me on more drugs too which I am scared to death of. This is a disease that came from the devil for sure. Hope some of you are better today. Liz 4 March 12 I was crying when I ate - anything. Then I got a sample of something at local Whole Foods and it changed my life. It is called Chlor-Oxygen. The sample was the capsules, but the liquid is so much better.

It soothed all sores immediately. Your mouth will turn green. Swish it around, then spit. Do it at night I use Squigle toothpaste and by the next morning and several brushes, my teeth are presentable. I am doing much less now as most pain is gone.

One other very, very calming product is hyalauronic acid lozenges by VRP. I tried Gengigal and hated it. Cannot take it - makes me worse. But the lozenges were a godsend.

I had to use half a bottle a day so it is expensive but it works wonders. I have researched both chlorophyllin and HA. Chlorophyllin has a long history of being used to heal wounds, especially in the army of WWII. HA has some interesting research about its wound healing properties.

For me, these saved my life. No cinnamon, no harsh anything, just pure relief. I have been through 3 bottles of the lozenges and will be ordering more. Oh, and folic acid liquid I spent one day just researching because I couldn't live with the pain any more. I bought things that didn't work but many that did - Chlor-Oxygen is probably the easiest to get but the lozenges are online as is folic acid liquid. Works for me, good luck to all and hope it might work for you.

But beware of the green! Ann 26 February 12 Hi I'm Sharon and I have had lichen planus in my gum for a year. If it goes worse after yers?

What is the reel risk that erosive lichen planus will lead to oral cancer the total risk and for erosive Sharon 22 February 12 hi everyone marie b here as im not keen on veg 2 get my goodness i have been cooking and blending carrot kale sprouts broc spinach leeks butternut qaush with veg stock a good pot last 3 days know it sounds yuk but it is nice and you are getting all your vits in one go get my biopsy march 5 really nervous good luck all with soup marie b 14 2 12 marie b 14 2 12 14 February 12 Thank you Liz, I appreciate what you've written here.

Anna 12 February 12 Hi Anna I am sure you must be scared of all this unusual info given, if it was me I would stick to tried and tested remedies from other OLP suferers on this site, I get annoyed when people ie doctors give this info scaring folk like yourself as if "oh just go ahead and do as we say" and you end up miserable worse than ever, okay for them to say that but the OLP patient is the recipient of the pain, for myself I get better results from Betnesol from my doctor who really understands, this is a steroid mouth wash - you just rinse, spit out, it really is effective and helps along with the diet of course, the citrus, a no no for most of us and the mouth hygien ie tongue brushing, toothpaste a must without Sodium Laurl Sulphate, go on site and choose one there are lots which help and keep looking on the site for the best info as most docs are not sufferers - we are!

Liz 10 February 12 I was diagnosed with oral lichen planus a month ago. This was only after my dentist, following a routine 6-month checkup, wanted me to see a dermatologist dr. I was told by the doctor that that was what I would read but that I should go ahead and apply to my gums anyway.

Just to be sure, I talked to my dentist before I used it the first time and she assured me that this is indeed correct, that she had several patients who have OLP and this is what they use also on their gums. Now, two minutes is a long time when all you're doing is sitting there massaging the gums. The taste is not good but it doesn't make me gag either. If it will keep it from spreading, then I will do whatever I can. This is the ritual I go through at the very end of my day because once I do this, I am not to eat or drink for 30 minutes -- so I do it and then just go to bed.

Yesterday I discovered what appears to be a blood blister underneath my tongue -- if that's what it is. I have an appointment next week for another dermatologist to evaluate because I know that OLP can evolve into oral cancer if left untreated -- I am not pushing any panic button at this point and will not assume that it is "a growth" that requires biopsy. Anyway, this is my experience thus far in dealing with OLP -- two months ago the name of this autoimmune disease was nowhere in my vocabulary.

Anna 10 February 12 I have just been diagnosed with OLP still waiting for biopsy results although have had canker sores for years so I suspect I've had it for a long time. It seems to be triggered by coffee, chocolate, wine, cakes ans sweets which fits in with other people's experience Why is nobody doing research into the causes???

I have spent the last couple of weeks reading as much as I can about OLP and canker sores and am finding that rinsing with salt water after eating anything at all is helping a little to relieve the sores on my tongue. I read an article about some research into taking Lycopene to treat OLP. It appears there are no side effects and this is a powerful antioxident anyway so I'm giving it a go.

Anybody else done this? Ros 2 February 12 Hi there I am still squeezing fresh lemons and using as a mouth wash, swallow if you wish as it is VitaminC and even though they are a bitter fruit I read on this site a long time ago lemons are not citrus but alkali. Must say my mouth is not as bad as it was. After reading Layne's input of 24 January I really sympathise as I can go back years now and think that I was as bad with my mouth in a terrible state, skin peeling off and every bit of food or drink hurting like hell , over the years and advice from others I always use SLS free toothpaste, no wine, no citrus and even cheap chocolate just triggers my mouth off along with sweets so if I do not watch then I suffer terrible.

Been taking Vitamin B complex plus iron also for many months it really helps, so I contribute everything I am doing is helping. Unfortunately when I go for a 3 month checkup my OLP is still there this past 8 years but nothing like the way it was 3 years ago when it became so bad I was referred to hospital, really I think it is a condition for life that needs care and attention to diet, boosting the immune system and try to have a less stressful lifestyle, I was hoping would bring some new treatments but do not think it will ever happen.

All the best folks. Beth 1 February 12 I have been reading everything I can get my hands on about this disease, been to the doctor with it, got three tubes of cream, one for mouth, one for skin lesions and one for my lips. I have used all faithfully but my lips hurt worse and I have lesions and even a hole in my right jaw. Personally I wish doctors would take this disease more seriously. Supposedly it is only suppose to last janywhere from a few weeks to a couple of years, well I have already had it a few years and it is only getting worse.

Sorry if I sound too negative I just wish we could all find some help that didn't cost an arm and leg. Janice January 30, 31 January 12 i have yet 2 be diagnosed with olp but my dentist said he is certain it is olp waiting for appointment about 3mths ago i had a root canel filling this is wen it started ive since had tooth out it scared me so much at first but i stopped all citrus fruit tomatoes and spices i am takin vit b complex and fish oil capsules also trying 2 eat plenty of fish it has calmed down some and not so sore but still got the redness and marks in my mouth dont know if other people want 2 try this but worth a go cant do you any harm and is good 4 you anyway good luck marie b 27 january 12 27 January 12 I was diagnosed back in March of My mouth is so sore now and cheeks so swollen.

They keep rubbing against my back molars and are so raw I have all the white streaks, blisters, I have it where it gets so bad the skin comes off of my gums and I end up with them bleeding and then scabbing over So painful that I can barely open my mouth or talk or eat I have been doing mostly liquids for a month now and it's not getting any worse.

My tongue feels too big for my mouth too and I keep biting it. I brush my teeth with Biotene toothpaste but need to read the ingredients on the tube I have also suffered with this just as skin problems. I now have a patch on my thigh that's now looking like a burn I was told that it was contact dermatitis like 30 years ago Layne 24 January 12 Wow I've only recently been told I have OLP.

No biopsy yet, though will likely ask for one to be sure. In my reading since it all started months ago, I've started to realize I need to avoid cinnamon hard at Christmas, time! Hopefully that and a good non-SLS toothpaste will help alot. Hopefully all of your great advice will keep it that way! I'm gonna try to avoid the steroids as long as I can, since they help me only when I'm using them, then it comes right back Shelb1 27 December 11 Hi all hope someone somewhere comes up with a cure for all of us OLP suffereres Must say for myself only problem I have at the moment is when I eat 'rubbish' ie chocolate not the real dark stuff, pineapple and biscuits, fruit scones etc, sweetie gums and toffee, all which I love but drives me crazy within an hour as the tingling starts almost immediately, even pineapple yoghurt gives me a reaction now so my New Year resolution is really to be more aware and have more determination of just what I put in my mouth!!

I am still using fresh lemon juice which I find really good and cleansing with no problems at al. Also found out that Persimmon fruit or KAKI which it is also called is a bad trigger for me, trying to be healthy with the fruit stuff is trial and error. Maybe I should stick to carrots and onions, turnip etc which seems to have no bad effects. Good luck for Beth 24 December 11 What does not make sense about this diagnosis is that it's thought to be auto-immune. If OLP was auto-immune, why would it get worse when you are stressed read: You should actually experience less symptoms, atleast short term if this was true.

I belive it is thought to be auto immune only due to doctors not being able to identify the right pathogen causing it, with high certainty.

Probably becasue the pathogen only in some indeviduals lead to OLP. Recent studies have be pointing in the direction of viral infections, e. This also explains why steroids in many cases are just making the condition worse, becasue they down regulate your immune response, that lessens symptoms short term, but make the viral infection prolifirate.. The two latter types are likely to cause cell changes, just like LP..

I think it's likely they are the same in many cases.. Swallowing the medicine could lead to serrious side-effects. As for diet, Vitamin A is associated with a lower risk of cell changes, as is vitamin B12, vitamin C, vitamin E, and beta-carotene.

Educatedguess 19 December 11 Hi Scottie, Many thanks for your reply. I have felt so alone since being diagnosed with L. I only came across this site last night. It is incredible how many are out there suffering, in some cases more than me.

I'm afraid I can't eat porridge any more because even the oat particles make my mouth sore. So I mainly have weetabix with warm milk and a little honey instead of using artificial sweeteners. As my dentist tells me , it's just a case of trial and error. I definately think that there should be more research into this sometimes debilitating condition. I mean , we have to eat don't we but when your mouth is so painful its sometimes impossible. When I was first referred to my local N.

Hospital for investigations into my condition the waiting list was so long that I paid to be seen privately. When I spoke to someone cocerning my N. It is just as well that I had the funds to be seen privately , but many people cannot afford it.

Anyway enough of my rants, todays been a good day. Every good wish sent to those who are suffering. Tina 7 December 11 Hi there Tina Ifeel your pain but re the fillings, I hd all mine removed and replaced without any difference, not to say it will not work for you but I spent a fortune and many a sore mouth from dental work without any change, for myself it only can be an immune disorder like a lot of OLP sufferers.

Keeping as healthy as can be is my solution and I benefit from no citrus stuff except my above message re lemons which are supposed to be an alkali fruit, oranges drive me mad along with grapes, wine etc, the list is endless, even chocolate triggers my OLP so much so that the skin in inner cheeks actually sloughs off leaving mouth almost raw but then it heals quickly only for something else to set of an allergic reaction.

Porridge in the morning for me is helpful, I am sure you know all this but hope your OLP gets better. Best of luck Scottie Scottie 7 December 11 Hello fellow sufferers, I have been suffering with lichen planus for over 2 years. I have tried various ways of boosting my immune system, such as taking vit. I use Difflam oral rinse and spray which are temporary relief by numbing the pain.

This condition is so frustrating. I may be o. Other people don't understand about how painful it gets. They seem to think that its just spicy food that is the problem but other L. As others have stated on this site, it has to do with this consistancy of food. I can only eat cereal for example if I pour hot milk over to make like baby food! My dentist told me when I was first diagnosed that it would get a lot worse before it gets better! But at least he did give me some hope that it would get better.

He also advised me to change all my fillings as in some cases it has helped. I was a bit dubious as to whether thi would be of any benifit and of course the cost involved. I am now considering this option and blow the cost , if it works then it will be worth it.

Tina Shaddick 7 December 11 Hi all Seems a bit harsh but I read on one of the inputs to try fresh lemon, not the bottled stuff I did it faithfully, it did sting the first few times but I think perhaps it has worked as my OLP is fine at the moment 4 weeks now I did persevere as it was really stingy but hopefully it has worked, will let the site know if there is a change.

Scottie 15 November 11 Hello All, After many times that I had mouth pain, my doctor thought I had allergies, so she gave me allergy pills. But unfortunately it did not stop the pain and sourness.

I started having these symptoms since last year after I took some antibiotics. The doctor told me at the time that it will go away, and I have nothing to worry about. But it never went away, it just got worse with time. I was really in shock when I got ulcers on the side of my tongue and also itching on the roof of my mouth, and red flamed gums. She then told me that she thinks it is Oral Lichen Planus. And that only 1 percent of people world wide get this disease.

I was asking her if I did not have oral cancer, she says no trust me I saw oral cancer before and I am pretty sure it is oral lichen planus. I am very frustrated about this news. Especially knowing that it is not curable. Some days I am in pain and some days I am fine. I would like to know what to eat? Or what not to eat! I don't eat spicy foods anymore, nor do I drink alcohol anymore at a party. I noticed it helped a bit.

But what about healthy but acidy foods? Like Orange juice or lemon? I am happy I found a forum, where we can support and help each other out! The sides of my mouth are also splitting and after trying cold sore lotion unsuccessfully, the chemist said it looked like a vitamin B difficiency.

I noticed that Scottie mentions it too, so worth a try. I will try some of the products mentioned on this site too. Heather2 5 November 11 Elaine, interesting to hear about the "mouth rinse" technique - I will convey your sentiments to Doc Squigle. Dom Walton 29 September 11 Dr. Cutler, I want to thank you for making the formula for Squigle Toothpaste. It doesn't burn or even tingle my horrible OLP mouth. All other rinses set my mouth on fire. I am so grateful to you. Elaine 28 September 11 I've had OLP for about a year, just came up at some point had a lot of stress in my life at the time and dental work and hasn't gone away.

Ive been doing my research, and if this is an autoimmune problem like a lot of Doctors suggest then ive also looked into that. There seems to be a lot of bad information flying about around autoimmune problems, the main one being to 'suppress it'.

You see the thing is, if your immune system has a problem, its not that its out of control and wild its that its having to cope with something it can't cope with! What it actually needs is help, not suppressing. Ive read several sites for other autoimmune problems that quite clearly state that the human body has a natural defence mechanism and when this mechanism is out of control it attacks the good cells as well as bad and this is when you get inflammation.

Now to help this system out and 'reset' your immune system you needs much bigger doses of vitamins than you would otherwise need on a regular daily basis. Think about it, if you only need mg of Vitamin c for example to keep healthy, you are going to need a lot more if you immune system isnt working properly.

So a two fold approach is needed. Secondly, you need to fight the infection from the outside and thats brushing twice a day and an oral mouthwash, but avoid any mouthwash that contains alcohol. A lot of mouthwashes now come in "Alcohol Free' versions and this is a must. You need to solve the root cause of OLP not the condition. A lot of people on here have said they were run down, stressed out when they got OLP and i was no different, this is why the immune system needs all the help it can get and it needs big doses every day for at least a month.

Im not expecting it to go away in a month considering i have had it nearly 2 years. Do some research into what im saying here, find the links between autoimmune conditions, its effects on the body and the need for a massive boost in the way of vitamins. If you have a sore mouth and find it hard to eat then that alone contributes to not getting enough of the right nutrients your body needs and only makes the situation worse. Andy 20 September 11 Hi all I've had this for about half a year now after having oral surgery for wisdom teeth.

Fortuneatley, I don't have it as bad as most of you. But, it still sucks. For example, a person may do fine eating berries and citrus fruits, but they may have horrible reactions to wine or sauerkraut.

For help figuring out what to eat, those with histamine intolerance may want to check out my Paleo Recipe Generator. It contains over Paleo-approved recipes, and allows you to exclude many high histamine foods from your meal plan, including fermented dairy, eggs, tomatoes, eggplant, fruit, certain spices, vinegar, alcohol, and seafood. Even with a histamine intolerance, you can still enjoy many delicious Paleo recipes: There are few other online resources for low-histamine meal plans, and most are not Paleo compliant.

Just remember, individual results will vary! Do you follow a low histamine Paleo diet? Have you seen a difference in your health as a result? Share your story in the comments below. Sign up for FREE updates delivered to your inbox. I hate spam too.

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